Making a Difference
Our Impact
Storm the Heavens Fund is a community dedicated to creating a world where no child dies from DIPG.
Total Donated to DIPG Research
$0
Where Your Donations Go
Funded Research Projects
Your donations have supported these critical research initiatives working towards a cure for DIPG.
DMG-ACT
Diffuse Midline Glioma-Adaptive Clinical Trial
$400,000
Storm the Heavens Fund has committed $400,000 to support the Diffuse Midline Glioma-Adaptive Clinical Trial (DMG-ACT).
Philomena Project
The Philomena DIPG Research Initiative
$322,000
Storm the Heavens has funded the Philomena DIPG Research Initiative Project in its entirety.
Stanford Car-T
Stanford Car-T Cell Trial
$125,000
Storm The Heavens Fund contributed $125,000 to help fund a Nurse Practitioner position in the Stanford Car-T cell trial.
DIPG Collaborative
The DIPG Collaborative
$87,000
During our time as a Foundational Partner with the DIPG Collaborative, Storm The Heavens Fund contributed a total of $87,000.
ALSF Partnership
Alex's Lemonade Stand Foundation
$25,000
Storm the Heavens Fund donated $25,000 to Alex's Lemonade Stand Foundation to fund a DIPG research grant.
DDRFA
DIPG/DMG Research Funding Alliance
Founding Member
Storm the Heavens Fund proudly invested in the DIPG/DMG Research Funding Alliance (DDRFA) as a founding member.
Additional Research Support
Beyond our major funded projects, Storm the Heavens Fund has contributed to various other foundations and institutions advancing DIPG research.
Oncoceutics (ONC201 Expanded Access Program)
$10,000Funding to assist in an Expanded Access program for ONC201 in the United States, allowing patients with H3 K27M-mutant glioma to access this investigational medicine.
Brain Storm Summit
$5,000Supporting awareness and research collaboration efforts.
CureFest
$5,000Contributing to childhood cancer awareness initiatives.
Tough2Gether Breakfast
$5,000Supporting community events that raise awareness for DIPG.
To date, Storm the Heavens Fund has contributed an additional $47,500+ to various foundations and institutions beyond our major funded projects.
Our Commitment
Research-Focused
Your donations fund critical DIPG clinical trials and research projects at leading institutions worldwide.
Trusted Partners
We partner with established, reputable research institutions and provide regular updates on research progress.
Federal Tax ID (EIN)
82-2521813
Join Our Community
In Bean's honor, Storm the Heavens Fund is committed to spreading awareness and funding desperately needed research. We believe, with your help, we can fund a cure that will give every child diagnosed with DIPG the chance to live a full, healthy life.
Every child has the right to grow up to be an adult.
