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What is DIPG

DIPG is Diffuse Intrinsic Pontine Glioma, the most devastating cancer diagnosis in existence.

Facts about DIPG

  • DIPG has a 0% survival rate with a median survival of just 9 months from diagnosis.
  • DIPG affects the pons portion of the brain stem, rendering nervous system function impossible. DIPG is the leading cause of brain tumor related death in children.
  • Astronaut Neil Armstrong’s daughter, Karen, died from DIPG in 1962, at just 2 years old.
  • Virtually nothing has changed in the treatment options or prognosis of this disease in the almost 60 years since her death.
  • Despite these grim statistics, pediatric cancer research gets very little funding when compared to adults.
  • Of the only 4% of the federal budget that goes to pediatric cancer, DIPG gets almost nothing compared to other childhood cancers such as leukemia. It’s time we give DIPG the focus and funding it needs.

Together we can put an end to the 0% survival rate of DIPG.